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The Center for Solutions for ME/CFS is one of a few centers across the country dedicated to studying this condition, but it can no longer remain operational, Lipkin said.

ME/CFS affects multiple parts of the body, including the brain, the immune system, and the endocrine system.

While Long Covid might have brought some increased recognition for the ME/CFS community, the same degree of funding and recognition was not given to ME/CFS research, which received about $13 million in federal funding for 25 research projects in 2024.

Now, a critical source of ME/CFS research has been slashed as well, Lipkin said.

Several projects were underway at the center at Columbia, including studies designed to test the role of genetics in ME/CFS, find biomarkers that could explain flare-ups, and track which infections went on to form ME/CFS in patients.