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Nevertheless, there was no shortage of gratitude in the air as Vedder discussed EBRP’s work combating epidermolysis bullosa — a rare skin condition that causes intense blistering and can lead to fatal skin cancers among children with severe cases — and the connections made among the community of families, doctors and philanthropists coming together to try to find a cure.

Along with family friends, Vedder and his wife, Jill, co-founded the EB Research Partnership, a nonprofit that funds research to find a cure for epidermolysis bullosa — a rare skin condition that can be fatal for infants with severe cases.

The proceeds will be donated to EB Research Partnership, a nonprofit that researches treatment and cures for epidermolysis bullosa.

The teen was born with dystrophic epidermolysis bullosa, a rare genetic condition that causes blisters all over his body and in his eyes.

The 70-year-old started a fundraiser after meeting 14-year-old girl Isla Grist, who suffers from rare skin disease Epidermolysis bullosa.