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The disorder, known as hypoplastic left heart syndrome, comprises less than 4 percent of congenital heart defects.

Next, Children's Healthcare of Atlanta, the children's hospital collaborating with Georgia Tech and Emory will start recruiting for a clinical trial investigating the treatment's efficacy in newborns with hypoplastic left heart syndrome.

But everything changed when a routine ultrasound showed that one of the twins, William, had hypoplastic left heart syndrome, a severe congenital condition in which the left side of the heart is underdeveloped.

Kori was born with hypoplastic left heart syndrome, meaning the left side of his heart was under developed.

Surgeons gave Kori - who was born with hypoplastic left heart syndrome - a new heart in 2018 but the organ was rejected.