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It wasn’t mastocytosis, my doctor declared at an emergency appointment.

When I was 22, I was diagnosed with mastocytosis.

Fewer than one in 30,000 adults have mastocytosis to begin with, and typically the skin rashes are associated with a childhood onset.

Five decades later, in 1949, scientists described a rare genetic disorder called mastocytosis, in which mast cells produce clones, building up in the skin, bones, and other organs.

Mariana Castells, director of the Mastocytosis Center at Brigham and Women's Hospital in Boston, told me in an email that she's seen no data showing that long Covid patients have the requisite diagnostic markers of MCAS.