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Dr Guy Leschziner, a consultant neurologist, says the drugs still play an important role but he believes that drug companies, health authorities and doctors need to better warn patients of these side effects.

A few years ago, Matthew Schrag, a neurologist at Vanderbilt University, discovered possible image tampering in papers that supported the hypothesis, including in an influential 2006 Nature study that was eventually retracted.

For example, caffeine is sometimes used to help premature babies breathe, said Dr. Shannon Kilgore, a neurologist at Stanford University School of Medicine.

She had “catastrophic childhood epilepsy,” the neurologist had told him, and a drug not yet available in the U.S. was their best bet to treat her nonstop seizures.

Jones went along, accompanied by his neurologist, who gave strict instructions not to get too excited.