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Alessi, now aged four, requires round-the-clock nursing, and Reagan, her sole carer, only receives six hours a month of respite care from the Jessie May charity.

The Northern Trust said it did not place anyone in Hydebank as it was "a matter for the judicial system" and added that current pressures on respite care and residential placements across Northern Ireland have caused "significant challenges".

He first started respite care when he was four, as his mother needed help because she felt his behaviour was no longer manageable at home.

The NHS used to supply respite care that would give those families a break of one or two nights per month.

Mrs Crowe said her daughter qualifies for respite care, meaning that the family are able to apply for help while they take a break from caring duties - but that without a portable bed Taylor was at risk of getting injured when outside of their home.