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The genetic condition can cause serious medical complications such as spinal cord compression, sleep apnoea, bowed legs, narrowing of the spinal canal and recurrent ear infections.

Patients receive Qalsody as an injection into the spinal canal every few weeks.

An MRI scan of Erin’s brain performed while she was hospitalized had uncovered something unusual: a Chiari malformation, in which brain tissue extends into the spinal canal.

Fao had an MRI exam after the injury and it was discovered he has spinal stenosis, which means the space inside the backbone, or spinal canal, is too small.

In extreme cases, the spinal canal remains open and exposed.