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The most common problems include chronic headaches, difficulty swallowing and decreased muscle strength, as well as syringomyelia, a condition that occurs when a cyst forms in the spinal cord.

WashU Medicine is the lead institution in the Park-Reeves Syringomyelia Research Consortium, with information from more than 1,200 patients with Chiari type-1 to comb for correlations.

It is particularly necessary in patients who present with both syringomyelia and headaches, though some patients continue to experience effects despite surgery.

Actually, he had what is known as syringomyelia—pronounced sir-ring-go-my-ale-ee-ah—an extremely rare disease of the central nervous system.

Syringomyelia is a disease you are born with, although it is not hereditary and does not manifest itself until much later in life.